National. 35 chapters and support groups. Founded 1948. Provides information and referrals on many topics to persons with spinal cord injuries and diseases, their families and interested professionals. Group development guidelines, monthly newsletter, support groups and peer counseling. Online listing of local chapters. Write: National Spinal Cord Injury Association 6701 Democracy Blvd., Suite 300 Bethesda, MD 20817 Voice: 1-800-962-9629 Fax: 301-990-0445 Website: http://www.spinalcord.org E-mail: info@spinalcord.org Verified: 10/14/2008
Online. Founded 1992. A family friendly monitored electronic message system that enables children and adolescents with disabilities or chronic illness (also parents/caregivers/siblings) to share experiences, information, encouragement, support and hope through messages. Registration is free. Website: http://www.abilityonline.org Verified: 10/14/2008
National network. Founded 1979. Provides peer support through networking for farmers and ranchers with disabilities. Connects recently injured individuals with persons with similar disability. Support through talking, correspondence and visitation. Write: Barn Builders Peer Support Network 225 S. University St. W. Lafayette, IN 47907-2093 Voice: 765-494-5088 Fax: 765-496-1356 Website: http://www.barnbuilders.info E-mail: bng@ecn.purdue.edu Verified: 4/24/2009
Online. A global community that integrates information, resources and communication opportunities for persons with cognitive and other disabilities, their families and professionals. Broad range of discussion boards. Website: http://www.familyvillage.wisc.edu Verified: 10/15/2009
National. 200 affiliated groups. Founded 1990. Organization dedicated to the life-long concerns of brothers and sisters of children with special health, developmental and mental health concerns. Provides training and technical assistance regarding Sibshops and workshops for school-age siblings. Write: Sibling Support Project 6512 23rd Ave. NW, Suite 213 Seattle, WA 98117 Voice: 206-297-6368 Fax: 509-752-6789 Website: http://www.siblingsupport.org E-mail: donmeyer@siblingsupport.org Verified: 10/22/2008
International. 28 chapters. Founded 1994. Provides education regarding the impact of chronic illness and/or disability on a family. Information, referrals, phone support, e-mail correspondence and 'how-to' guides on developing a local group. Write: Project DOCC (Delivery Of Chronic Care) 18 Dunster Rd. Great Neck, NY 11771 Voice: 516-829-0786 Fax: 516-498-1899 Website: http://projectdocc.org E-mail: projdocc@aol.com Verified: 10/21/2008
National. Founded 1946. Aim is to provide support and improve the quality of life for all Americans with spinal cord injuries and disorders. Write: United Spinal Association 75-20 Astoria Blvd. Jackson Heights, NY 11370-1177 Voice: 718-803-3782 ext. 1203 Verified: 10/21/2008
National. 34 chapters and 58 field service offices. Aim is to ensure that spinal cord injured or diseased veterans achieve the highest quality of life possible. Membership is available solely to individuals who are American citizens with spinal cord dysfunction as a result of trauma or disease. Must have served on active duty and had an other than dishonorable discharge. Support groups, publications, VA benefits counseling, magazine, information and referrals. Write: Paralyzed Veterans of America 801 18th St. NW Washington, DC 20006 Voice: 1-800-424-8200 or 202-872-1300 Website: http://www.pva.org E-mail: info@pva.org Verified: 10/21/2008
Online. Provides a forum for quadriplegics (tetraplegics) to support and communicate with others who share the same condition. Not strictly a SCI (spinal cord injury) forum. Forum is for anyone who suffers a partial or full loss of function of all 4 extremities of the body, i.e. a quad due to any reason not just from a spinal cord injury. Website: http://www.makoa.org/quadlist.htm Verified: 10/15/2009
Online. 1157 members. Founded 1998. Listserv for and about adult brothers and sisters of people with special health, developmental and emotional needs. Opportunity for young adults and adult brothers and sisters to share information and discuss issues of common interest. Subscribers can connect with their peers, seek information about local services, create connections for their siblings and discuss the proper policies agencies should have toward brothers and sisters. Website: http://groups.yahoo.com/group/sibnet Verified: 10/13/2009
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