International network. Founded 1983. 5 regional chapters. Support for families with daughters who have Aicardi syndrome, a rare seizure disorder that affects primarily females and is characterized by seizures and retinal lesions. Resources, research projects, biennial conferences, phone support network, research group, newsletters, information and referrals. Dues $25/year. Write: Aicardi Syndrome Newsletter 1510 Polo Fields Ct. Lousiville, KY 40245 Voice: 502-244-9152 Website: http://www.aicardisyndrome.org E-mail: aicnews@aol.com Verified: 10/27/2009
Online. 1300+ members. Founded 1998. Support and information for parents and caregivers of children with infantile spasms. Opportunity to discuss their children, treatment options and offer support. Professionals welcomed. Website: http://health.groups.yahoo.com/group/infantilespasms Verified: 10/13/2009
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
