Healthwise

Aicardi Syndrome / Infantile Spasms


Self Help Clearinghouse

Aicardi Syndrome Newsletter, Inc.

International network. Founded 1983. 5 regional chapters. Support for families with daughters with Aicardi syndrome, a rare seizure disorder that affects primarily females and is characterized by seizures and retinal lesions. Resources, research projects, biennial conferences, phone support network, research group, newsletters, information and referrals. Dues $25/year.
Write:
Aicardi Syndrome Newsletter
1510 Polo Fields Ct.
% Denise Park Parsons
Lousiville, KY 40245
Voice: 502-244-9152
Website: http://www.aicardisyndrome.org
E-mail: aicnews@aol.com
Verified: 12/21/2007

Infantile Spasms List

Online. 1300+ members. Founded 1998. Support and information for parents and caregivers of children with infantile spasms. Opportunity to discuss their children, treatment options and offer support. Professionals welcomed.
Website: http://health.groups.yahoo.com/group/infantilespasms
Verified: 12/18/2007



This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.