Ataxia
Self Help Clearinghouse
A-T Children's Project
(BILINGUAL) Online. Founded 1993. Enables families of children
affected by ataxia telangiectasia to seek information and share
thoughts with other families. Family online forum, information and
workshops.
Write:
A-T Children's Project
668 S. Military Trail
Deerfield Beach, FL 33442
Voice: 1-800-543-5728 or 954-481-6611
Website: http://www.atcp.org
E-mail: info@atcp.org
Verified: 10/16/2007
National Ataxia Foundation
International. 73 groups. Founded 1957. Assists families with
ataxia. Provides education for professionals and the public.
Encourages prevention of ataxia through genetic counseling. Promotes
research into causes and treatment. Newsletter, assistance in
starting support groups, information and referrals. Group
development guidelines.
Write:
Nat'l Ataxia Foundation
2600 Fernbrook Lane, Suite 119
c/o Michael Parent
Minneapolis, MN 55447
Voice: 763-553-0020
Fax: 763-553-0167
Website: http://www.ataxia.org
E-mail: naf@ataxia.org
Verified: 9/19/2007
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