Barth Syndrome
Self Help Clearinghouse
The Barth Syndrome Foundation
International. Founded 2000. (MULTILINGUAL) Offers support to
affected individuals and their families. Provides information,
support awareness, medical database, diagnostic and clinical
descriptions, fact sheets, moderated listserv information available
on website, research, outreach, newsletter, referrals, pen pals and
biennial conference. Peer-to-peer mentoring program.
Write:
Barth Syndrome Foundation, Inc
P.O. Box 974
Perry, FL 32348
Voice: 850-223-1128
Website: http://www.barthsyndrome.org
Verified: 9/27/2007
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