International. 20 affiliated groups. Founded 1987. Emotional support for persons with Batten disease. Information and referrals, support group meetings, phone support, conferences and newsletter. Assistance provided for starting new groups. Write: Batten Disease Support and Research 166 Humprhies Dr., Suite 2 Reynoldsburg, OH 43068 Voice: 1-800-448-4570 Website: http://www.bdsra.org E-mail: bdsra1@bdsra.org Verified: 10/1/2008
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