Cavernous Angioma
Self Help Clearinghouse
Angioma Alliance
Online. Founded 2002. Support and information for any person
affected by cavernous angioma of the brain and spine. Educational
materials, support via a community forum, listserv, chats and
contact information for research studies. Maintains tissue/DNA bank
and patient registry. Site available in Spanish and (in a limited
way) Portuguese. Hosts annual national family conferences and
scientific workshops for researchers. Works to increase physician
and public awareness of the illness.
Voice: 1-866-432-5226 or 757-623-0615
Website: http://www.angiomaalliance.org
E-mail: info@angiomaalliance.org
Verified: 12/20/2007
|
|
|
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
|
|
