Online. Founded 2002. Support and information for any person affected by cavernous angioma of the brain and spine. Educational materials, support via a community forum, listserv, chats and contact information for research studies. Maintains tissue/DNA bank and patient registry. Site available in Spanish and (in a limited way) Portuguese. Hosts annual national family conferences and scientific workshops for researchers. Works to increase physician and public awareness of the illness. Website: http://www.angiomaalliance.org E-mail: info@angiomaalliance.org Verified: 4/24/2009
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