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Cortico-Basal Ganglionic Degeneration


Self Help Clearinghouse

FTD_Support

Online. 616 members. Founded 2006. International support forum set up by carers of people with various types of fronto-temporal dementia (includes, but not limited to, Pick's disease, frontotemporal dementia, primary progressive aphasia, frontotemporal lobe degeneration, dementia with Lewy bodies and corticobasal ganglionic degeneration). Primary purpose of group is to communicate with one another in a supportive and friendly environment regarding the challenges faced as caregivers and the changes seen in loved ones effected by FTD. People who suffer from FTD also welcome.
Website: http://health.groups.yahoo.com/group/FTD_support
Verified: 12/27/2007

CBGD (Corticobasal Ganglionic Degeneration) Support Network

Online. 1093 members. Founded 1998. Support for anyone affected by corticobasal ganglionic degeneration (a rare neurological disorder characterized by cell loss in the brain). Offers education, information and newsletter. Networks members together for emotional support.
Write:
CBGD Support Network
1941 Stevely Ave.
% Theresa Roberts
Long Beach, CA 90815
Website: http://health.groups.yahoo.com/group/cbgd_support
Verified: 9/25/2007



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