Coffin-Lowry Syndrome
Self Help Clearinghouse
The Coffin-Lowry Syndrome Foundation
International network. Founded 1991. Serves as a clearinghouse for
information on Coffin-Lowry syndrome. Forum for exchanging
experiences, advice and information with other CLS families. Seeks
to become a visible group in the medical, scientific, educational
and professional communities in order to facilitate referrals of
newly diagnosed individuals and to encourage medical and behavioral
research. Maintains mailing list of families and professionals.
Provides newsletter, family support and informational packet.
3045 255th Ave, S.E.
c/o Mary Hoffman
Sammamish, WA 98075
Voice: 425-427-0939
Website: http://clsf.info or Group discussion Website: http://groups.yahoo.com/group/clsfoundation/
E-mail: clsfoundation@yahoo.com
Verified: 4/25/2007
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