DeBarsy Syndrome
Self Help Clearinghouse
DeBarsy Syndrome National Network
National network. Founded 1997. Support and information sharing for parents of children with DeBarsy syndrome, a rare disorder. Pen pals, phone support, peer support and counseling. WRITE: DeBarsy Syndrome Nat'l Network c/o Cheryl Dinne, Family Ties of Nevada P.O. Box 50815 Sparks, NV 89435 CALL: 775-823-9500 E-MAIL: dcdinnell@mindspring.com VERIFIED: 3/31/2003
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