Dystrophic Epidermolysis Bullosa
Self Help Clearinghouse
DEBRA of America
(Dystrophic Epidermolysis Bullosa Research Association) National
network. Founded 1980. Support and information for families affected
by epidermolysis bullosa. Promotes research, provides education for
patients, families and professionals, emergency financial support,
emergency wound care supplies, New Family Advocate program,
newsletter, biennial national conference, information and referrals.
Write:
DEBRA of America
5 West 36th St., Room 404
New York, NY 10018
Voice: 212-868-1573 or 1-866-332-7276
Fax: 212-868-9296
Website: http://www.debra.org
E-mail: staff@debra.org
Verified: 4/27/2007
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