Ectodermal Dysplasias
Self Help Clearinghouse
National Foundation for Ectodermal Dysplasias
National network. Founded 1981. Distributes information on
ectodermal dysplasia syndrome and treatments. Provides support
programs for families and funds research projects. Quarterly
newsletter. Annual family conference and regional conferences,
dental implant program and scholarship opportunities. Directory of
members for informal contacts among families.
Write:
National Foundation/Ectodermal Dysplasias
410 E. Main St., Box 114
Mascoutah, IL 62258
Voice: 618-566-2020
Fax: 618-566-4718
Website: http://www.nfed.org
E-mail: info@nfed.org
Verified: 5/5/2008
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