Ehlers Danlos Syndrome
Self Help Clearinghouse
Ehlers-Danlos National Foundation
National. 35 local groups. Founded 1985. Provides resources for
Ehlers-Danlos syndrome patients, families and health care
professionals. Mission is to disseminate accurate information,
provide a network of support and communication and to foster and
support research. Online message boards for EDNF members.
Write:
Ehlers-Danlos National Foundation
3200 Wilshire Blvd., S. Tower, Suite 1601
Los Angeles, CA 90010
Voice: 213-368-3800
Fax: 213-427-0057
Website: http://www.ednf.org
E-mail: staff@ednf.org
Verified: 10/24/2007
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