Ellis Van Creveld Syndrome
Self Help Clearinghouse
Ellis Van Creveld Support Group
International network. Founded 1997. Provides support and
information for families affected by Ellis Van Creveld syndrome (aka
chondroectodermal dysplasia), an extremely rare form of dwarfism.
Networks families together for support. Literature, advocacy,
phone support, information and referrals. Connects with medical
community to find ways to save the lives of infants born with this
genetic disorder.
Write:
Ellis Van Creveld Support Group
17 Bridlewood Trail
Honeoye Falls, NY 14472
Voice: 585-624-8277
E-mail: PattiMO44@aol.com
Verified: 9/19/2007
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