National network. Founded 1991. Support, information, education, networking and advocacy for individuals with facioscapulohumeral disease (aka Landouzy-Dejerine muscular dystrophy). Purpose is to increase awareness, understanding and conduct research and education on the second most prevalent muscular dystrophy in adults. Funds research through grants to researchers. Acts as a clearinghouse for information on the FSHD disorder and on potential drugs and devices designed to alleviate the effects of the disease. Newsletter, support group meetings, conferences and literature. Write: FSH Society Nancy V. c/o BBRI R353, 64 Grove St. Watertown, MA 02472 Voice: 617-658-7878 Fax: 617-658-7879 Website: http://www.fshsociety.org Verified: 10/8/2008
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