Facioscapulohumeral Muscular Dystrophy
Self Help Clearinghouse
FSH Society, Inc. (Facioscapulohumeral Disease)
National network. Founded 1991. Support, information, education,
networking and advocacy for individuals with facioscapulohumeral
disease (aka Landouzy-Dejerine muscular dystrophy). Purpose is to
increase awareness, understanding and conduct research and education
on the second most prevalent muscular dystrophy in adults. Funds
research through grants to researchers. Acts as a clearinghouse for
information on the FSHD disorder and on potential drugs and devices
designed to alleviate the effects of the disease. Newsletter,
support group meetings, conferences and literature.
Write:
FSH Society
3 Westwood Rd.
Lexington, MA 02420
Voice: 617-658-7878
Fax: 617-658-7879
Website: http://www.fshsociety.org
Verified: 5/5/2008
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