Gaucher Disease
Self Help Clearinghouse
National Gaucher Foundation
National. 2 chapters. Founded 1984. Provides information and
assistance for those affected by Gaucher disease. Provides education
and outreach to increase public awareness. Operates the Gaucher
Disease Family Support Network. Quarterly newsletter, phone support
and medical board. Guidelines to help start similar groups.
Write:
National Gaucher Foundation
61 General Early Dr.
Harpers Ferry, WV 25425
Voice: 1-800-428-2437
Fax: 304-725-6429
Website: http://www.gaucherdisease.org
E-mail: ngf@gaucherdisease.org
Verified: 10/27/2007
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