Glycogen Storage Disease
Self Help Clearinghouse
Association For Glycogen Storage Disease
U.S. and Canadian network. 3 affiliated groups. Founded 1979.
Mutual support and information sharing among parents of children and
patients with Glycogen Storage disease. Fosters communication
between parents, patients and professionals, creates public
awareness and encourages research. Offers GSDnet support group
via e-mail. Newsletter, phone support and conference.
Write:
Association for Glycogen Storage Disease
P.O. Box 896
Durant, IA 52747
Voice: 563-785-6038
Website: http://www.agsdus.org
E-mail: maryc@agsdus.org
Verified: 9/28/2007
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