Gorlin Syndrome / Basal Cell Carcinoma Nevus Synd
Self Help Clearinghouse
Basal Cell Carcinoma Nevus Syndrome Life Support Network
National network. Provides support services to patients, families
and medical professionals dealing with the many manifestations of
basal cell carcinoma nevus syndrome (aka Gorlin syndrome or nevoid
basal cell syndrome). Offers online forum, quarterly newsletter,
annual retreat and conference and periodic regional meetings.
Write:
Basal Cell Carcinoma Nevus Syndrome Life Support Network
P.O. Box 321
% Sheila LaRosa
Burton, OH 44021
Voice: 1-866-834-1895
Fax: 440-635-0267
Website: http://www.bccns.org
E-mail: info@bccns.org
Verified: 12/20/2007
The Gorlin Syndrome Group
International network. 3 affiliated groups. Founded 1992. Provides
support and information for individuals with Gorlin (aka nevoid
basal cell carcinoma) and their families. Information on coping
skills, treatments and current research. Helpline, newsletter,
meetings and networking.
Write:
Gorlin Syndrome Group
11 Blackberry Way
Penwortham, Preston
Lancashire PR1 9LQ, England
Voice: 440 1772517624
Website: http://www.gorlingroup.co.uk
E-mail: info@gorlingroup.co.uk
Verified: 12/14/2007
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