National network. Provides support services to patients, families and medical professionals dealing with the many manifestations of basal cell carcinoma nevus syndrome (aka Gorlin syndrome or nevoid basal cell syndrome). Offers online forum, quarterly newsletter, annual retreat and conference and periodic regional meetings. Write: Basal Cell Carcinoma Nevus Syndrome Life Support Network PO Box 321 Burton, OH 44021 Voice: 1-866-834-1895 or 440-834-0011 Fax: 440-834-0132 Website: http://www.bccns.org E-mail: info@bccns.org Verified: 10/1/2008
International network. 3 affiliated groups. Founded 1992. Provides support and information for individuals with Gorlin (aka nevoid basal cell carcinoma) and their families. Information on coping skills, treatments and current research. Helpline, newsletter, meetings and networking. Write: The Gorlin Syndrome Group 11 Blackberry Way Penwortham, Preston Voice: 440 1772 496849 Website: http://www.gorlingroup.org E-mail: info@gorlingroup.org Verified: 10/28/2009
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