Hallerevorden-Spatz
Self Help Clearinghouse
NBIA Disorders Association
International network. Founded 1996. Provides emotional support to
families affected by Neurodegeration with Brain Iron Accumulation -
a rare progressive neurological disorder resulting in iron deposits
in the brain that causes loss of muscle control. Formerly
Hallervorden-Spatz syndrome. Educates public on neurodegenerations
with brain iron accumulation, supports and monitors research
through grants and BioBank. Newsletter, literature, bi-annual
conferences, on-line listserv, family networking program and
advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92019-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.NBIAdisorders.org
E-mail: info@NBIAdisorders.org
Verified: 9/19/2007
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