International network. Founded 1996. Provides emotional support to families affected by Neurodegeration with Brain Iron Accumulation - a rare progressive neurological disorder resulting in iron deposits in the brain that causes loss of muscle control. Formerly Hallervorden-Spatz syndrome. Educates public on neurodegenerations with brain iron accumulation, supports and monitors research through grants and BioBank. Newsletter, literature, bi-annual conferences, on-line listserv, family networking program and advocacy efforts. Write: NBIA Disorders Association 2082 Monaco Ct. El Cajon, CA 92109-4235 Voice: 619-588-2315 Fax: 619-588-4093 Website: http://www.nbiadisorders.org E-mail: info@nbiadisorders.org Verified: 10/8/2008
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