Hereditary Hemorrhagic Telangiectasia
Self Help Clearinghouse
HHT Foundation International, Inc
International. Founded 1991. Mutual support and education for
persons interested in hereditary hemorrhagic telangiectasia (aka
Osler-Weber-Rendu syndrome). Supports clinical and genetic research.
Counseling and advice for patients. Referrals to appropriate
treatment centers. Annual patient/doctor conference. Tri-annual
newsletter 'Direct Connection.' Aims to protect all members under
the Right To Privacy Act. Dues $45/yr.
Write:
HHT Foundation International
P.O. Box 329
Monkton, MD 21111
Voice: 1-800-448-6389 (US) or 410-357-9932 (International)
Fax: 410-357-9931
Website: http://www.hht.org
E-mail: hhtinfo@hht.org
Verified: 4/25/2007
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