Holoprosencephaly
Self Help Clearinghouse
Families for HoPE, Inc.
Offers support and education to families of infants and children
diagnosed with holoprosencephaly (HPE), a congenital brain
malformation. Offers support for all stages of the HPE journey.
Write:
Families for HoPE, Inc.
1219 N. Wittfield St.
% Leslie Harley
Indianapolis, IN 46229
Voice: 317-898-5556
Website: http://www.familiesforhope.com
E-mail: info@familiesforhope.com
Verified: 9/20/2007
Holoprosencephaly Support Group
Online. 554 members. Founded 1999. Mutual support for parents and
families of children with holoprosencephaly (HPE). HPE is a rare
birth disorder caused by the failure of the forebrain of the embryo
to properly divide, causing defects in the development of the face
and brain structure and function.
Website: http://health.groups.yahoo.com/group/holoprosencephaly
Verified: 9/25/2007
|
|
|
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
|
|
