Immune Deficiency
Self Help Clearinghouse
SCID Mailing Group
Online network. Founded 1997. Online self-help group for families
afflicted with severe combined immune deficiency or who have lost a
child to this very rare genetic disorder which results in severe
infections. Provides opportunity for families to share information
and resources with one another.
Website: http://www.scid.net
E-mail: SCIDemail@scid.net
Verified: 5/8/2008
Immune Deficiency Foundation
National. Founded 1980. Provides support and education for families
affected by primary immune deficiency diseases. Newsletter,
handbook, videotape and educational materials for public and medical
professionals. Networks individuals and family members affected by
immune deficiency. Scholarships and fellowship program. Group
development guidelines.
Write:
Immune Deficiency Foundation
40 W. Chesapeake Ave., Suite 308
Towson, MD 21204
Voice: 1-800-296-4433
Website: http://www.primaryimmune.org
E-mail: idf@primaryimmune.org
Verified: 11/3/2007
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