Joubert Syndrome
Self Help Clearinghouse
Joubert Syndrome Foundation and Related Cerebellar Disorders
International network. 7 chapters. Founded 1992. Sharing of
knowledge, experience and emotional support for parents of children
with Joubert syndrome and related cerebellar disorders. Aims to
educate physicians and support team. Group offers a newsletter and a
biennial conference.
Write:
Joubert Syndrome Fdn.
6931 South Carlinda Ave.
Columbia, MD 21046
Voice: 410-997-8084
Fax: 410-992-9184
Website: http://www.joubertsyndrome.org
E-mail: joubertduquette@comcast.net
Verified: 04/17/2006
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