Kabuki Syndrome
Self Help Clearinghouse
Kabuki Syndrome Network
International network. Founded 1997. Provides mutual support and
information for families affected by Kabuki syndrome (aka
Niikawakuroki syndrome). Coordinates family directory. Literature,
phone support, pen pals, moderated listserv and newsletter. Brochure
in English and Spanish available.
Write:
Kabuki Syndrome
8060 Struthers Cr.
% Dean Schmiedge
Regina, Saskatchewan, S4Y 1J3 Canada
Voice: 306-543-8715
Website: http://www.kabukisyndrome.com
E-mail: margot@kabukisyndrome.com
Verified: 5/1/2008
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