Langer-Giedion Syndrome
Self Help Clearinghouse
Langer-Giedion Syndrome Association
International network. Founded 1997.
Provides mutual support for families affected by Langer-Giedion syndrome (aka trichorhinophalangeal syndrome Type II) and TRPS Type I. Works to promote research. Matches families together for support. Newsletter, phone support, advocacy. Dues $20.
WRITE:
Langer-Giedion Syndrome Assn.
89 Ingham Ave.
Toronto, Ontario
Canada M4K 2W8
CALL: 416-465-3029 Louise Kinross
E-MAIL: lkinross@rogers.com
WEBSITE: http://www.lgsa.net
VERIFIED: 5/26/2004
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