Mannosidosis, Alpha
Self Help Clearinghouse
International Advocate for Glycoprotein Storage Disease (ISMRD)
International network. Founded 1999. Provides emotional support for
families affected by any glycoprotein storage disease. Offers
educational resources for medical community. Promotes research to
develop treatments. Phone support, literature, pen pals, newsletter,
advocacy, online message boards, chat rooms, e-mail discussions,
information and referrals.
Write:
International Advocate for Glycoprotein Storage Disease
2980 East Pillar Dr.
Whitemore Lake, MI 48189
Voice: 734-449-9038
Website: http://www.ismrd.org
Verified: 11/11/2007
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