International network. Founded 1999. Provides emotional support for families affected by any glycoprotein storage disease. Offers educational resources for medical community. Promotes research to develop treatments. Phone support, literature, pen pals, newsletter, advocacy, online message boards, chatrooms, e-mail discussions, information and referrals. Write: ISMRD P.O. Box 328 Dexter, MI 48130 Voice: 734-449-8222 Website: http://www.ismrd.org Verified: 10/9/2008
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
