International network. Founded 1999. Provides emotional support for
families affected by any glycoprotein storage disease. Offers
educational resources for medical community. Promotes research to
develop treatments. Phone support, literature, pen pals, newsletter,
advocacy, online message boards, chat rooms, e-mail discussions,
information and referrals.
Write: ISMRD
P.O. Box 328 Dexter, MI 48130
Voice: 734-449-8222
Website: http://www.ismrd.org
Verified: 10/9/2008
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