Marfan Syndrome
Self Help Clearinghouse
National Marfan Foundation
National network. Founded 1981. Network includes chapters,
support groups and volunteer telphone support contacts. Provides
information on Marfan syndrome and related connective tissue
disorders to patients, families, medical professionals and the
public. Provides a means for patients and relatives to share
experiences and support one another. Supports and fosters research.
Conference, newsletter and publications.
Write:
National Marfan Foundation
22 Manhasset Avenue
Port Washington, NY 11050
Voice: 1-800-862-7326 ext. 10 or 516-883-8712
Fax: 516-883-8040
Website: http://www.marfan.org
E-mail: staff@marfan.org
Verified: 10/12/2007
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