Marden-Walker Syndrome
Self Help Clearinghouse
The Marden-Walker Syndrome Organization
National network. Founded 1998.
Mutual support and education for families affected by Marden-Walker syndrome. Provides parent-to-parent network, and physician-to-physician dialogue. Information referrals, newsletter, phone support, pen pals, literature, and advocacy.
WRITE:
Marden-Walker Family Support Group
P.O. Box 239
New Haven, KY 40051
CALL: 502-549-3028 Ann Marie Stearns
E-MAIL: stearnsky@yahoo.com
VERIFIED: 4/28/2004
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