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Healthwise

Marinesco-Sjogren Syndrome


Self Help Clearinghouse

Marinesco-Sjogren Syndrome Support Group

National network. Founded 2000. Support for families affected by Marinesco-Sjogren syndrome (MSS) a rare, genetic disorder characterized by ataxia, cataracts, small stature and retardation. Encourages research into the cause and cure. Information and referrals.
Write:
MSS Support Group
1640 Crystal View Circle
Newbury Park, CA 91320
Voice: 805-499-7410
Website: http://www.marinesco-sjogren.org
E-mail: mss@marinesco-sjogren.org
Verified: 10/13/2008



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