International network. Founded 1994. Support for parents of children with Duchenne and Becker muscular dystrophy. To improve the treatment, quality of life and long-term outlook for all individuals affected by DMD through research, advocacy, education and compassion. Provides user-friendly website with online forums, scientific and legislative conferences, newsletters, information on newest diagnosis, standards of care and research strategies. Write: Parent Project for MD Research 158 Linwood Plaza Fort Lee, NJ 07024 Voice: 1-800-714-5437 or 201-944-9985 Fax: 201-944-9987 Website: http://www.parentprojectmd.org E-mail: info@parentprojectmd.org Verified: 10/14/2008
National. 200+ chapters. Founded 1950. Provides comprehensive medical services to persons with neuromuscular disease. Supports research into the causes, cures and treatments of neuromuscular disorders. Support programs include self-help groups, phone friends, pen pals and scheduled online chat sessions. Write: Muscular Dystrophy Assn. 3300 E. Sunrise Dr. Tucson, AZ 85718-3299 Voice: 1-800-572-1717 Fax: 520-529-5454 Website: http://www.mda.org E-mail: mda@mdausa.org Verified: 10/10/2008
International network. Founded 1983. Purpose is to share and encourage the exchange of non-technical, neuromuscular and disability-related information. Referrals to support groups via networking website. Write: SMDI International P.O. Box 479, Bridgewater, NS Canada, B4V 2X6 Voice: 902-685-3961 Fax: 902-685-3962 Verified: 10/10/2008
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