Scleroderma
Self Help Clearinghouse
Juvenile Scleroderma Network
International. Founded 1999. Support network connecting children
with juvenile scleroderma with each other to help them feel less
isolated and less frightened. Provides comfort and reassurance to
families. Membership $20/yr. Newsletter, information and referrals,
literature, advocacy, telephone support network and pen pal program.
Moderated message board and e-mail discussion group. Provides
assistance and materials on starting new groups.
Write:
Juvenile Scleroderma Network
1204 W. 13th St.
San Pedro, CA 90731
Voice: 310-519-9511
Website: http://www.jsdn.org
Verified: 5/5/2008
Scleroderma Foundation, Inc.
National. 22 chapters, 170 affiliated groups. Founded 1970.
Dedicated to providing emotional support to people with scleroderma
and their families. Provides scleroderma education and public
awareness and funds research. Referrals to local support groups and
physicians. Advocacy and conferences. Online chatrooms. Dues $25.
Write:
Scleroderma Foundation
330 Rosewood Dr., Suite 105
Danvers, MA 01923
Voice: 1-800-722-4673 or 978-463-5843
Fax: 978-463-5809
Website: http://www.scleroderma.org
E-mail: sfinfo@scleroderma.org
Verified: 10/27/2007
Scleroderma Research Foundation
National. Founded 1987. Mission is to find a cure for scleroderma by
funding and facilitating the most promising research. Provides
scleroderma information online and via 'Insights' scleroderma
newsletter.
Write:
Scleroderma Research Foundation
220 Montgomery St., Suite 1411
San Francisco, CA 94104
Voice: 1-800-441-2873
Fax: 415-834-9177
Website: http://www.sclerodermaresearch.org
E-mail: info@sclerodermaresearch.org
Verified: 5/2/2008
|
|
|
This information does not replace the advice of a doctor. Healthwise disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.
|
|
