Tay-Sachs Disease
Self Help Clearinghouse
National Tay-Sachs and Allied Diseases Association
(MULTILINGUAL) International. 5 affiliated groups. Founded 1957.
Dedicated to the treatment and prevention of Tay-Sachs, Canavan and
related genetic diseases. Provides information and support services
to individuals of all ages and families affected by these disorders
as well as caregivers and the public at large. The strategies for
achieving these goals include public and professional education,
research, genetic screening, support services (i.e. peer support
group for parents, grandparents, extended family members) and
advocacy. Translations available in Spanish, Russian, Hebrew and
French.
Write:
National Tay-Sachs and Allied Diseases Association
2001 Beacon St., Suite 204
Boston, MA 02135
Voice: 1-800-906-8723 or 617-277-4463
Fax: 617-277-0134
Website: http://www.ntsad.org
E-mail: info@ntsad.org
Verified: 4/30/2007
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