(Transplanted to Resolve Ure-cycle Enzyme-deficiency) Online. Mutual support and information for families of transplanted children with urea cycle disorder. Website: http://www.true-kids.org Verified: 10/21/2009
National network. Founded 1989. Links families, friends and professionals who are dedicated to the identification, treatment and cure of urea cycle disorders, genetic disorders causing an enzyme deficiency in the urea cycle. Networks families together for support, educates professionals, public and supports research. Phone support, literature and newsletter. Dues $35. Write: National Urea Cycle Disorders Fdn. 75 South Grand Ave. Pasadena, CA 91105 Voice: 1-800-386-8233 Fax: 626-578-0823 Website: http://www.nucdf.org E-mail: info@nucdf.org Verified: 10/26/2009
Online. Opportunity for parents of children with argininosuccinic aciduria to come together for support and information. Discussion board, stories on affected children and links. Website: http://disc.yourwebapps.com/indices/106610.html Verified: 10/22/2009
Online. Opportunity for parents caring for a child with a urea cycle disorder to discuss concerns and ideas. Goal is to increase awareness of urea cycle disorders in order to improve diagnosis. Website: http://disc.yourwebapps.com/indices/157587.html Verified: 10/21/2009
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