Von Hippel Lindau
Self Help Clearinghouse
VHL Family Alliance (Von Hippel-Lindau Syndrome)
(MULTILINGUAL) International network. 28 US chapters; 11 foreign
affiliates. Founded 1993. Opportunity for families affected by VHL
to share their knowledge and experiences with each other and the
medical community. Goal is to improve diagnosis, treatment and
quality of life for VHL families. Newsletter, phone support,
education, tissue bank and handbook. Literature available in
Spanish, German, French, Japanese, Dutch and other languages. Funds
research. Assistance in starting local chapters.
Write:
VHL Family Alliance
2001 Beacon St., Suite 208
Boston, MA 02135-7787
Voice: 1-800-767-4845 or 617-277-5667
Fax: 858-712-8712
Website: http://www.vhl.org
E-mail: info@vhl.org
Verified: 12/20/2007
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