Xeroderma Pigmentosum
Self Help Clearinghouse
Xeroderma Pigmentosum Society
International network. Founded 1995. Provides sharing of support, information and coping skills for families affected by xeroderma
pigmentosum. Quarterly informational newsletter. Promotes research
into finding a cure. Information and referrals, phone support,
conferences, literature, advocacy in community, education and
protection. Free window tinting on homes of patients. Camp Sundown
for patients of all ages and their families.
Write:
XP Society
437 Snydertown Rd.
Craryville, NY 12521
Voice: 518-851-2612 (voice/fax)
Website: http://www.xps.org
E-mail: carn@xps.org
Verified: 5/3/2007
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