X-Linked Hyophosphatemia (Vitimin D Res Rickets)
Self Help Clearinghouse
XLH Network
Online. Founded 1996. Volunteer organization offering support and information for individuals and families affected by X-linked
hypophosphatemia (aka X-linked hypophosphatemic rickets, familial
hypophosphatemic rickets or vitamin D resistant rickets). Also open
to those affected by similar disorders including autosomal dominant
hypophosphatemic rickets and tumor-induced osteomalacia. Open to
interested professionals dedicated to understanding in terms of
support, research and developing new treatments. Exchanges and
disseminates information. Offers an online brochure and members
listserv.
Write:
XLH Network
4562 Stoneledge Lane
c/o Joan Reed
Manlius, NY 13104
Website: http://www.xlhnetwork.org
E-mail: joan.reed@xlhnetwork.org
Verified: 4/30/2007
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