Brain Injury / Brain Tumor / Coma
Self Help Clearinghouse
Brain Tumor Society
National. Founded 1989. Committed to finding a cure for brain
tumors. Improves the quality of life for brain tumor patients,
survivors and caregivers through research, education, support
programs and services. Maintains a database of brain tumor support
groups, funds research, newsletter, e-newsletter, comprehensive
resource guide and brain tumor Fact Sheets.
Write:
Brain Tumor Society
124 Watertown St., Suite 3-H
Watertown, MA 02472-2500
Voice: 1-800-770-8287
Fax: 617-924-9998
Website: http://www.tbts.org
E-mail: info@tbts.org
Verified: 5/3/2007
American Brain Tumor Association
National. Founded 1973. Dedicated to eliminating brain tumors by
funding and encouraging research and providing free patient
education, materials, pen pal program, newsletter, publications and
resource listings. Support group referrals and assistance in
starting groups.
Write:
American Brain Tumor Assn.
2720 River Rd., Suite 146
Des Plaines, IL 60018
Voice: 1-800-886-2282
Fax: 847-827-9918
Website: http://www.abta.org
E-mail: info@abta.org
Verified: 5/3/2007
Brain Injury Association, Inc.
National. 42 state associations. 600 affiliated groups. Founded
1980. Advocacy organization providing services to persons with
brain injuries, their families and professionals. Increases public
awareness through state associations, support groups, information
and resource network, seminars, conferences, literature and
prevention programs. Guidelines for starting similar groups.
Write:
Brain Injury Association
1608 Spring Hill Rd., Suite 110
Vienna, VA 22182
Voice: 1-800-444-6443
Fax: 703-761-0755
Website: http://www.biausa.org
E-mail: braininjuryinfo@biausa.org
Verified: 10/3/2007
Coma Recovery Association
National network. Founded 1980. Support and advocacy for families
of coma and traumatic brain injury survivors. Provides information,
referrals and support group for family members and survivors.
Quarterly newsletter and yearly conferences for families, brain
injury professionals and survivors.
Write:
Coma Recovery Association
8399 Republic Airport, #106
Farmingdale, NY 11735
Voice: 631-756-1826
Fax: 631-756-1827
Website: http://www.comarecovery.org
E-mail: inquiry@comarecovery.org
Verified: 11/13/2007
Acoustic Neuroma Association
National. 53 affiliated groups. Founded 1981. Support and
information for patients who have been diagnosed with acoustic
neuroma, a benign tumor affecting the 8th cranial nerve. Quarterly
newsletter ($35/yr), nationwide support group network, biennial
national symposium and patient information booklets.
Write:
Acoustic Neuroma Association
600 Peachtree Parkway, Suite 108
Cumming, GA 30041-6899
Voice: 1-877-200-8211
Fax: 1-877-202-0239
Website: http://www.anausa.org
E-mail: info@anausa.org
Verified: 10/15/2007
National Brain Tumor Foundation
National. Founded 1981. Support and information for persons with
brain tumors and their loved ones. Provides funding for research as
well as client services for brain tumor patients and family members.
Offers support group listings, a quarterly newsletter, conferences,
literature, support line, information and referrals. Assistance in
starting and maintaining support groups.
Write:
National Brain Tumor Foundation
22 Battery St., Suite 612
San Francisco, CA 94111-5520
Voice: 1-800-934-2873
Fax: 415-834-9980
Website: http://www.braintumor.org
E-mail: nbtf@braintumor.org
Verified: 5/1/2007
Children's Brain Tumor Foundation, Inc.
(BILINGUAL) National network. Founded 1988. Provides a
Parent-to-Parent Network to link parents of a child with a brain or
spinal cord tumor with another parent with similar experiences for
information and support. Offers free resource guide
(English/Spanish), Parker's Brain Storm (a book for children), Brain
Tumor Week at Camp Sunshine, newsletter, annual teleconferences
(available for replay on website) and funds research.
Write:
Children's Brain Tumor Foundation
274 Madison Ave., Suite 1004
New York, NY 10016
Voice: 1-866-228-4673
Fax: 212-448-1022
Website: http://www.cbtf.org
E-mail: info@cbtf.org
Verified: 5/2/2007
BRAIN TRUST, The Healing Exchange
Online. Founded 1993. Mission is to exchange information and support
among people affected by brain tumors and related conditions
including patient-survivors, families, caregivers and health
professionals. Online support groups cover a large range of brain
tumors, acquired injuries and other special interests.
Write:
The Healing Exchange BRAIN TRUST
186 Hampshire St.
Cambridge, MA 02139-1320
Voice: 1-877-252-8480
Fax: 617-876-2332
Website: http://www.braintrust.org
E-mail: info@braintrust.org
Verified: 10/27/2007
Musella Foundation
National. Provides emotional support and exchange of information for
patients with various brain tumors and their families. Information
on research, medication and clinical trials. Chat rooms, support
groups, video library and other resources.
Write:
Musella Foundation
1100 Peninsula Blvd.
Hewlett, NY 11557
Voice: 1-888-295-4740
Fax: 516-295-2870
Website: http://www.virtualtrials.com
E-mail: musella@virtualtrials.com
Verified: 10/3/2007
Spouses of Brain Tumor Patients
Online. Support for spouses of brain tumor patients. Opportunity to
connect with others who understand the emotions and frustrations
involved with a spouse who has a brain tumor. Message board and chat
room.
Website: http://www.bradsupdates.com/care.html
Verified: 4/27/2007
The Brain Injury Information NETwork (TBINET)
Online. Various support group email lists for brain injury, stroke
and other 'medical' related issues. Also provides lists for
caregivers, family and friends.
Website: http://www.tbinet.org
Verified: 4/27/2007
Brain Tumour Foundation of Canada
Online. Founded 1982. Virtual support group includes online chat
room, message board and moderated chat events. Support groups meet
monthly in many Canadian communities.
Write:
Brain Tumour Foundation of Canada
620 Colborne St., Suite 301
London, Ontario, CA, N6B 3R9
Voice: 519-642-7755
Fax: 519-642-7192
Website: http://www.braintumour.ca
E-mail: braintumour@braintumour.ca
Verified: 11/2/2007
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