National Organization for Rare Disorders, Inc.
- Hereditary Sensory and Autonomic Neuropathy, Type III (HSAN, Type III)
- Hereditary Sensory Neuropathy Type III
- Riley-Day Syndrome
Familial dysautonomia is a rare genetic disorder of the autonomic nervous system (ANS) that primarily affects people of Eastern European Jewish heritage. It is characterized by diminished sensitivity to pain, lack of overflow tearing in the eyes, a decrease in the number of knob-like projections that cover the tongue (fungiform papillae), unusual fluctuations of body temperature, and unstable blood pressure. Symptoms of this disorder are apparent at birth. The autonomic nervous system controls vital involuntary body functions.
Dysautonomia Foundation, Inc.
315 W 39th St
New York, NY 10018
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Dysautonomia Foundation, Inc., Toronto Chapter
250 Franklin Avenue
Ontario, L4J 7K5
National Dysautonomia Research Foundation
PO Box 301
Red Wing, MN 55066-0102
Familial Dysautonomia Hope Foundation
121 S. Estes Dr., Suite 205D
Chapell Hill, NC 27514
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
Familial Dysautonomia Now Foundation
1170 Green Knolls Drive
Buffalo Grove, IL 60089
Dysautonomia Youth Network of America, Inc.
1301 Greengate Court
Waldorf, OR 20601
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Last Updated: 8/17/2007
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