National Organization for Rare Disorders, Inc.
- Acrofacial Dysostosis, Nager Type
- Nager Acrofacial Dysostosis Syndrome
- Split Hand Deformity-Mandibulofacial Dysostosis
Nager Syndrome is a rare disorder that may or may not be genetically derived. Major symptoms may include underdevelopment of the cheek and jaw area of the face. Down-sloping of the opening of the eyes, a smaller than normal jaw, lack or absence of the lower eyelashes, lack of development of the internal and external ear with related hearing problems and cleft palate may also occur. There may be underdevelopment or absence of the thumb, shortened forearms and poor movement in the elbow. Breathing and feeding problems may be present in infants with this syndrome.
Children's Craniofacial Association
13140 Coit Road
Dallas, TX 75240
FACES: The National Craniofacial Association
PO Box 11082
Chattanooga, TN 37401
Let's Face It
University of Michigan, School of Dentistry / Dentistry Library
1011 N. University
Ann Arbor, MI 48109-1078
Foundation for Nager and Miller Syndromes
13210 SE 342nd Street
Auburn, WA 98092
American Society for Deaf Children
800 Florida Avenue NE
Washington, DC 20002-3695
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
PO Box 241956
Los Angeles, CA 90024
Cleft Lip and Palate Foundation of Smiles
2044 Michael Ave SW
Wyoming, MI 49509
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Last Updated: 4/20/2008
Copyright 1992, 1993, 2000, 2002 National Organization for Rare Disorders, Inc.
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