Post Polio Syndrome
National Organization for Rare Disorders, Inc.
- Polio, Late Effects
- Post-Polio Muscular Atrophy
- Post-Polio Sequelae
- Postpoliomyelitis syndrome
Post-polio syndrome (PPS) is a syndrome that affects some people who have had polio (poliomyelitis) and occurs many years (typically from 10 to 40 years) after recovery from the initial infection. It is characterized by the development of progressive weakness in muscles that were affected by the original polio infection. In addition, those affected may experience extreme fatigue and joint pain. Skeletal deformities, such as scoliosis, may occur as a result of this syndrome. There is variation in the severity of symptoms. In severe cases, symptoms may mimic those of the rare disorder known as Lou Gehrig's disease (amyotrophic lateral sclerosis). The degree of muscle atrophy during the post-polio period appears to reflect the severity of the impact of the initial polio infection. People who were significantly affected by polio are more likely to experience severe symptoms from post-polio syndrome. The cause of this syndrome is not known. Although exact numbers are not available, it has been estimated that there are 300,000 polio survivors in the United States and that from one-fourth to one-half of them may ultimately develop some degree of post-polio syndrome.
4200 Wisconsin Avenue
Washington, DC 20016
Post-Polio Health International
4207 Lindell Boulevard
St. Louis, MO 63108-2915
British Polio Fellowship
Eagle Office Centre
Middlesex, HA4 6SE
Centers for Disease Control and Prevention
1600 Clifton Road NE
Atlanta, GA 30333
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
New Horizons Un-Limited, Inc.
811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
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Last Updated: 4/8/2009
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