Alagille Syndrome

Alagille Syndrome

Self Help Clearinghouse

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Alagille Syndrome Alliance

National network. Founded 1993. Support network for anyone who cares about people with Alagille syndrome, a rare, multi-symptom genetic disorder. Disseminates information. Aims to increase awareness in the general public as well as health professionals. Newsletter, phone support, medical advisory board, information and referrals. Online chatroom and bulletin board.

Write:

Alagille Syndrome Alliance, c/o Cindy L. Hahn

10500 SW Starr Dr.

Tualatin, OR 97223

Voice: 503-885-0455

Website: http://www.alagille.org

E-mail: alagille@alagille.org

Verified: 8/15/2012

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