Self Help Clearinghouse
National. 48 affiliated groups. Founded 1983. Information and support for patients and families affected by Charcot-Marie-Tooth disorders (also known as peroneal muscular atrophy or hereditary motor sensory neuropathy). Referrals, newsletter, phone help, support groups and conferences. Assistance starting similar groups.
PO Box 105
Glenolden, PA 19036
Voice: 1-800-606-2682 or 610-499-9264 ext. 8 (Mon.-Fri., 9am-5pm EST)