Self Help Clearinghouse
The Coffin-Lowry Syndrome Foundation
International network. Founded 1991. Serves as a clearinghouse for information on Coffin-Lowry syndrome. Forum for exchanging experiences, advice and information with other CLS families. Seeks to become a visible group in the medical, scientific, educational and professional communities in order to facilitate referrals of newly diagnosed individuals and to encourage medical and behavioral research. Maintains mailing list of families and professionals. Provides newsletter, family support and informational packet.
675 Kalmia PIace NW
Issaquah, WA 98027
This information is for educational purposes only and is unrelated to health plan benefits or coverage. Services addressed may not be covered under your health plan. If you have questions about your coverage, please refer to your benefit plan document or call the number on the back of your health plan membership ID card.