Cornelia De Lange
Self Help Clearinghouse
Cornelia de Lange Syndrome Foundation, Inc.
National. 2500+ member families. Founded 1981. Provides support and education to families affected by Cornelia de Lange syndrome. Supports research. Newsletter. Biennual meetings. Professional network.
Cornelia de Lange Syndrome Fdn.
302 West Main St., Suite 100
Avon, CT 06001
Voice: 1-800-223-8355 or 860-676-8166