Self Help Clearinghouse
National Foundation for Ectodermal Dysplasias
National network. Founded 1981. Distributes information on ectodermal dysplasia syndrome and treatments. Provides support programs for families and funds research projects. Quarterly newsletter. Annual family conference and regional conferences, dental implant program and scholarship opportunities. Directory of members for informal contacts among families.
Nat'l Fdn./Ectodermal Dysplasias
6 Executive Dr., Ste 2
Fairview Heights, IL 62208-1360