Ehlers Danlos Syndrome
Self Help Clearinghouse
Ehlers-Danlos National Foundation
National. 35 local groups. Founded 1985. Provides resources for Ehlers-Danlos syndrome patients, families and health care professionals. Mission is to disseminate accurate information, provide a network of support and communication and to foster research. Online message boards for EDNF members.
1760 Old Meadow Rd., Ste 500
McLean, VA 22102