Gorlin Syndrome / Basal Cell Carcinoma Nevus Synd
Self Help Clearinghouse
Basal Cell Carcinoma Nevus Syndrome Life Support Network
National network. Provides support services to patients, families and medical professionals dealing with the many manifestations of basal cell carcinoma nevus syndrome (aka Gorlin syndrome or nevoid basal cell syndrome). Offers online forum, quarterly newsletter, annual retreats and conferences for families. Periodic educational regional meetings for understanding treatment options, self-esteem building, clinical trial opportunities and raising family awareness.
BCCNS Life Support Network
PO Box 321
Burton, OH 44021