Hermansky-Pudlak Syndrome

Hermansky-Pudlak Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.

Write:

Hermansky-Pudlak Syndrome Network

c/o Donna Jean Appell

1 South Rd.

Oyster Bay, NY 11771-1905

Voice: 1-800-789-9477 or 516-922-4022

Fax: 516-624-0640

Website: http://www.hpsnetwork.org, http://www.hermansky-pudlak.org or http://www.chediak-higashi.org

E-mail: dappell@hpsnetwork.org

Verified: 1/15/2013

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use . How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.