Self Help Clearinghouse
(BILINGUAL) International network. Founded 1985. Mutual support and information for parents and patients with this group of rare disorders. Includes Erdheim-Chester disease, sinus histiocytosis Rosai Dorfman, xanthogranuloma, hemophagocytic lymphohistiocytosis, pulmonary eosinophilic granuloma, langerhans cell histiocytosis and familial erythrophagocytic lymphohistiocytosis. Website offers the opportunity for patients and families to network. Funds research. Literature and pamphlets (some available in Spanish) and newsletter.
Histiocytosis Assoc. of America
332 N. Broadway
Pitman, NJ 08071
Fax: 856-589-6614 / Jeff Toughill, President