Self Help Clearinghouse
FIRST (Foundation for Ichthyosis and Related Skin Types)
National network. Founded 1981. Provides support for people with ichthyosis through networking with others. Public and professional education. Supports research on treatment and cure. Advocacy issues, quarterly newsletter, publications and bi-annual conference. Recommended donation $40 (US); $50 (International).
2616 North Broad Street
Colmar, PA 1891519454
Voice: 1-800-545-3286 or 215-997-9400