Mucolipidosis Type 4
Self Help Clearinghouse
National network. Founded 1983. Support network for families of children diagnosed with mucolipidosis type 4, a genetic disorder characterized by variable psychomotor retardation that primarily affects Ashkenazi Jews. Supports fund-raising for research. Offers phone support, information and referrals.
719 E. 17th St.
Brooklyn, NY 11230
Voice: 1-877-654-5459 or 718-434-5067